Speaking out for People with
 Intellectual and Developmental Disabilities

Joint Report from HHS OIG, ACL, and OCR: Group Home Beneficiaries are at Risk of Serious Harm

This report, released in January, 2018 by the U.S. Department of Health and Human Services,' Office of the Inspector General, Administraton for Community Liiving, and Office of Civil Rights acknowledged the systemic shortcomings in protecting residents of HCBS waiver group homes from incidents of abuse and neglect. OIG found that up to 99 percent of these critical incidents were not reported to the appropriate law enforcement or state agencies as required. The report stated, “Group Home beneficiaries are at risk of serious harm. OIG found that health and safety policies and procedures were not being followed. Failure to comply with these policies and procedures left group home beneficiaries at risk of serious harm. These are not isolated incidents but a systemic problem – 49 States had media reports of health and safety problems in group homes.

Improving Background Checks for Direct Support Professionals

VOR supports a well-trained, well-paid workforce of healthcare professionals to care for our loved ones with intellectual and developmental disabilities (I/DD). A fully coordinated nationwide program for background checks for Direct Support Professionals (DSPs) would be essential to protecting individuals with I/DD while improving the quality and integrity of long-term caregivers.

VOR's position paper supporting National Background Checks is available here.

VOR Membership Letter For Your Family Group

As part of our Fall Membership Drive, we have created a letter that we hope you will send out to the members of your family organization. The purpose of the letter is to show the other families in your group who advocate locally that VOR can help them advocate nationally and unite with families in other states with shared experiences.

Please ask your family group to print copies of this letter and include them in their mailings.   You may include this with your newsletters, advocacy campaigns, or post it to your group's website. You may also consider including this letter with the "Thank You" letters that go out to members to after receiving donations to your group.

Download the Membership Letter here

Estate Planning: Wills and Bequests

The foresight of past VOR members and supporters has helped VOR plan for tomorrow by building a permanent growing fund that will provide for advocacy and all of the critical VOR services for future generations. Founded more than 35 years ago in 1983, VOR is a national 501(c)(3) organization governed by a volunteer board of directors and funded solely by dues and donations. We receive no government support. Through generous donations and bequests, VOR is able to represent individuals with intellectual and developmental disabilities and their families and guardians.

VOR's Testimony Concerning Protection & Advocacy Agencies and MFP to Senate Appropriations Subcommittee on Labor, HHS

On May 22, VOR submitted tesimony to the Senate Appropriations, Subcommittee on Labor, Health and Human Services, Education, and Related Agencies regarding the need to protect Intermediate Care Facilities for Individuals with Intellectual Disabilities as the Appropriations Committee negotiates continuing funding ot the Money Follows the Person Rebalancing Act (MFP) in its FY2021 Appropriations Bill.

VOR - MFP Letters to the Senate Finance Committee

In March, 2020 VOR's Legislative Committee sent a letter to the Senate Finance Committee, asking for an opportunity to provide testimony from families whose loved ones’ interests, health and welfare are directly impacted by the Money Follows the Person Rebalancing Program.

VOR continues to speak out about the shortcomings of MFP, and the manner in which it has been used to undermine Intermediate Care Facilities and to deny individuals and families their right to choose ICF care.

Read VOR's March 12, 2020 letter here

Read VOR's July 23, 2019 letter here