In September, 2018 VOR sent out 2 Action Alerts, asking Congress to pause and reconsider HR 3506, the EMPOWER Act to renew the Money Follows the Person (MFP) program.
VOR continues to support the rights of parents, family members, and concerned individuals as legal guardians of individuals with intellectual and developmental disabilities. We have collected some of our current and past documents here for your convenience.
VOR Response to National Council on Disability's Position on Guardianship and Supported Decision Making
In March of 2018, the National Council on Disability issued a position paper, "Beyond Guardianship, Toward Alternatives That Promote Greater Self-Determination". In September, VOR's Issues Oversight Committee submitted a report on our position and findings regarding that report.
Issues to Consider Regarding Guardianship and Supported Decision Making
By VOR's Issues and Oversight Committee on Guardianship Rights
Individuals with intellectual and developmental disabilities (I/DD) and their parents, family members and guardians may have heard about Supported Decision-Making (SDM), an initiative that could affect their decision-making rights. Some see SDM as an alternative to guardianship, while others view it as an attempt to remove the legal instrument that provides a safety net for vulnerable individuals.
VOR is a national organization that advocates for high quality care and human rights for individuals with I/DD. We understand the valuable role that guardians play in the emotional and physical well-being of their wards. As advocates who appreciate the diversity of the I/DD community and the need for a wide array of supports, we want to ensure that guardians and family members are aware of the issues connected to Supported Decision-Making so that they can make informed decisions about the care of their loved one with disabilities.
VOR Survey: Giving a Voice to Families and Guardians of Individuals with Intellectual and Developmental Disabilities in Various Residential Settings
Policy favoring deinstitutionalization has had a major adverse effect on many individuals, with a shift in funding priorities from Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID) and other specialized facilities, to smaller service options, such as Medicaid Home and Community-Based Services (HCBS) settings.