Speaking out for People with
Intellectual and Developmental Disabilities
In March of 2018, the National Council on Disability issued a position paper, "Beyond Guardianship, Toward Alternatives That Promote Greater Self-Determination". In September, VOR's Issues Oversight Committee submitted a report on our position and findings regarding that report.
This report, released in January, 2018 by the U.S. Department of Health and Human Services,' Office of the Inspector General, Administraton for Community Liiving, and Office of Civil Rights acknowledged the systemic shortcomings in protecting residents of HCBS waiver group homes from incidents of abuse and neglect. OIG found that up to 99 percent of these critical incidents were not reported to the appropriate law enforcement or state agencies as required. The report stated, “Group Home beneficiaries are at risk of serious harm. OIG found that health and safety policies and procedures were not being followed. Failure to comply with these policies and procedures left group home beneficiaries at risk of serious harm. These are not isolated incidents but a systemic problem – 49 States had media reports of health and safety problems in group homes.”
In September, 2018 VOR sent out 2 Action Alerts, asking Congress to pause and reconsider HR 3506, the EMPOWER Act to renew the Money Follows the Person (MFP) program.
Recent media reports have indicated that NYS’s Office of People with Developmental Disabilities (OPWDD) has been placing Level 2 and Level 3 sex offenders into residential group homes for individuals with intellectual and developmental disabilities. NYS classifies Level 2 offenders as having a moderate risk of repeat offense. Level 3 offenders are classified as having a high risk of repeat offense and pose a threat to public safety.
If you live in NY State and wish to take action on this issue, please go to:
http://salsa4.salsalabs.com/o/50829/p/dia/action4/common/public/?action_KEY=25589
On March 6th, 2018 the House Judiciary Committee convened to examine the harmful effects of class action lawsuits aimed at closing Intermediate Care Facilites for Individuals with Intellectual Disabilities (ICF's/IID). The hearing came at the request of Chairman Bob Goodlatte.
Testimony was presented by Martha Bryant, Mother, RN, BSN & VOR member, Caroline Lahrmann, Mother, VOR Ohio State Coordinator & past president, and Peter Kinzler, Father, longtime VOR Member, Director & Legislative Committee Chair. Alison Barkoff of the Center for Public Representation. 
spoke on behalf of those in favor of using class action lawsuits against ICF's/IID and opposed to providing notification to families and guardians of individuals residing in these homes.