For years, VOR has campaigned against Department of Justice (DOJ) efforts to close Intermediate Care Facilities. These efforts on the part of DOJ have resulted in the deaths of the individuals forced out of their ICF homes and into HCBS waiver settings.
VOR's Peter Kinzler has been working with Representative Bob Goodlatte (R-VA) to find ways to curtail these DOJ actions. On December 6, 2017, Representative Goodlatte sent a letter to Attorney General Jeff Sessions asking that DOJ "initiate a comprehensive investigation into the causes of the unspeakable number of deaths occuring across the country and suspend activities aimed at displacing fragile Americans from licensed ICFs/IID in good standing."
Click here to read Rep. Goodlatte's letter to the Attorney General
As part of our Fall Membership Drive, we have created a letter that we hope you will send out to the members of your family organization. The purpose of the letter is to show the other families in your group who advocate locally that VOR can help them advocate nationally and unite with families in other states with shared experiences.
Please ask your family group to print copies of this letter and include them in their mailings. You may include this with your newsletters, advocacy campaigns, or post it to your group's website. You may also consider including this letter with the "Thank You" letters that go out to members to after receiving donations to your group.
Download the Membership Letter here
VOR wants to show our appreciation to the people who provide the long-term care for our loved ones with Intellectual and Developmental Disabilities.
We are offering 100 free one-year digital subscriptions to VOR's weekly newsletter and Action Alerts. The subscriptions are available to Direct Support Professionals and Nursing, Medical, or Dental Staff at state-run or privately operated Intermediate Care Facilities for Individuals with Intellectual Disabilties (ICF/IID).
The Department of Health and Human Services (HHS) recently published a draft of their Strategic Plan for FY 2018-2022. The plan fails to mention ICF's or to acknowledge the specific needs of people with I/DD.
VOR has submitted point-by-point comments to each of the goals and strategies outlined in the plan.
Read VOR's Comments here
Download the HHS Draft Strategic Plan FY 2018 - 2022
Right To Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID)
Individuals who qualify for Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID)* under Medicaid have a legal right to such facilities for as long as they remain eligible and choose to do so. Despite a deinstitutionalization effort by those opposed to congregate care, the ICF/IID program remains a legally enforceable federal entitlement under Medicaid. States which have included ICF/IID in their Medicaid State Plans, but instead offer only Waiver services, are in violation of federal Medicaid law.
VOR's Ongoing Document:
Updated August 13, 2017
This document provides a bibliography of investigative media series, state audits and peer-reviewed research in more than half the states that detail systemic concerns with regard to quality of care in community-based settings for persons with developmental disabilities. Tragedies range from physical, emotional, and financial abuse, neglect and even death. Many of these outcomes are associated with a zest to move to a "community for all" vision people with developmental disabilities without adequately considering the ramifications of separating vulnerable people from specialized care and then doing away with a critical safety net (a/k/a deinstitutionalization). The lessons learned from more than 25 states should cause policymakers and lawmakers to take pause and recognize that a range of needs requires a range of service options.