VOR is a national non-profit, non-provider organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD).
With this letter, we present our “Key Principles in Support of the Rights and Opportunities for All People with Disabilities: Respecting Individual Choice” (VOR, September 2013).
As you will read, VOR is distinguished from all other national advocacy organizations in our support for a full array of residential and support options. We expressly support community-based care for individuals who choose that level of support, and expressly reject the closure of specialized congregate care settings (“deinstitutionalization”) for people who choose and need that level of care.
Our principles embrace the reality that people with disabilities are individuals with unique and varying needs. VOR rejects a “broad brush” approach to policies and rights which help most people with disabilities, but not others who experience profound I/DD or other serious I/DD and medical and/or behavioral disabilities. Civil and legal rights should not be spliced, applying to some, but not all, individuals with intellectual and developmental disabilities.
Read letter and principles here
Read More about VOR, including our Principles, Policy and Position Statements - the bottom line is choice.
VOR strongly supports Senator Murphy’s request for an immediate investigation into the preventable, predictable widespread tragedies impacting people with I/DD in small settings across the country.
Read VOR's letter to Daniel Levinson, Inspector General for the U.S. Department of Health and Human Services.
In an April 4, 2013 letter to Marilyn Tavenner, the Acting Administrator for the Centers for Medicare & Medicaid Services (CMS), Congressman Mike Thompson calls on the agency to rethink its pending proposal to narrowly define "community" for the purpose of licensing certain Medicaid programs.
"I share my constituents' concerns that the CMS proposal relies on arbitrary criteria to determine whether a setting is 'community enough," Congressman Thompson writes. "Of particular concern is the proposed requirement that the Secretary of the Department of Health and Human Services 'apply a rebuttal presumption that a setting is not a home and community-based setting, and engage in heightened scrutiny' with regard to homes 'on the grounds of, or immediately adjacent to, a public institution,' or homes that are part of a 'housing complex designed expressly around an individual's diagnosis or disability’,” he writes.
The Congressman expresses concern that the proposed definition is so narrowly written that it is "antithetical to individual choice," threatens the viability of existing housing communities, and discourages future innovation and expansion of services.
Read Congressman Thompson’s letter.
February 26, 2013
Given its long history of providing comprehensive, highly specialized care to Connecticut citizens with profound disabilities, Southbury Training School (STS) ICF/ID is a crucial part of Connecticut’s system of care for the intellectually and developmentally disabled (I/DD) which should be preserved and expanded through open admissions.
November 13, 2012
Please accept these comments in response to the emergency regulations issued by the Department of Developmental Services (DDS) regarding eligibility of DDS clients for services at 115 CMR 1.02, 115 CMR 2.01 and 115 CMR 6.02, which became effective September 26, 2012.
We are specifically concerned about 115 CMR 1.02 which reads:
The Department [of Developmental Services] is the clinical authority that determines the presence or absence of intellectual disability using the standard set forth at page 5 in the 11th edition of the American Association on Intellectual and Developmental Disabilities
We share the concerns expressed by our statewide affiliate COFAR, our affiliate CCMR, families of individuals with I/DD, and others who uniformly express concern about these proposed regulations.
VOR joins the chorus of heartfelt sympathy expressed for the families and friends of the victims of the Sandy Hook tragedy.
With so much “politics” (you name the issue) dividing our country, VOR prays that this tragedy finally unites parents, families, advocates, professionals, organizations, and policymakers in a way never before experienced.
There can be no real justice for the senseless killings in Connecticut and elsewhere, but uniting as a nation will get as close to healing as possible and will help prevent such senseless tragedy in the future.
As the President stated,
“’We can't tolerate this anymore,’ he added. ‘These tragedies must end, and to end them, we must change. We will be told that the causes of such violence are complex, and it is true. No single law, no set of laws can eliminate evil from the world or prevent every senseless act of violence in our society. But that can't be an excuse for inaction. Surely we can do better than this.’”
VOR agrees and central to necessary change is disability policy and mental health reform.
Read complete statement