Speaking out for People with
 Intellectual and Developmental Disabilities

Developmental Disabilities Assistance and Bill of Rights Act Reauthorization

Reform and Reauthorization of the Developmental Disabilities Act Urgently Needed

It has been 13 years since Congress reauthorized the Developmental Disabilities Assistance Act (DD Act). Authorizations for DD Act appropriations expired in 2007, although Congress has continued to fund these programs. DD Act programs, including Protection & Advocacy (P&A), DD Councils, and University Programs, operate in every state. The DD Act programs’ administering agency is the Administration on Intellectual and Developmental Disabilities (AIDD).

Oversight of federal AIDD and DD Act programs is inadequate. Through lobbying, class action lawsuits and other tactics, some DD Act programs are using their public funds to achieve dangerous deinstitutionalization policies, evicting vulnerable people with intellectual disabilities from public and private Medicaid-certified homes, disregarding individual choice and the legal right to appropriate services, as required by the DD Act, the Americans with Disabilities Act (as interpreted by the Supreme Court’s Olmstead decision) and Medicaid law.

We urge Congress to reform the DD Act by taking the following actions: 

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Additional DD Act Reauthorization Resource

New! VOR Federal Comments Urging Independent Oversight and Unbiased Audit for P&As; More Inclusive Public Input Process Necessary to Ensure Deinstitutionalization Goal Supported by Individuals Directly Impacted by Goal (September 17, 2012)

VOR Federal Comments Urging Objective Performance Measures for State DD Councils (May 28, 2012) 

VOR Federal Comments Urging Objective Performance Measures for State Protection & Advocacy Systems (June 28, 2012)

VOR Federal Comments Urging Objective Performance - Not More Self-Reporting - of DD Act Programs

VOR Comments and Objections to "Realizing the Intent of the DD Act: How the DD Network Advances The Independence, Productivity, and Integration of People with Intellectual and Developmental Disabilities" and VOR's Call for a Halt to DD Act Deinstitutionalization Activities Consistent with Clear Congressional Intent

VOR Responds to the National Council on Disability's "Rising Expectations: The Developmental Disabilities Act Revisted" report, released in February 2011.

Supporting Common Sense and the Law: Individuals and Families as 'Primary Decisionmakers'" (June 2011)

"Residential Choice: It's the Law" (June 2011)

VOR Executive Summary - The Need for Immediate Reforms

VOR Full Presentation - The Need for Immediate Reforms

VOR DD Act Task Force Report
Federal Oversight of Entities Funded Under the DD Act: Abuse of DD Act Programs' Powers and Resources

Family/Guardian Testimonials: P&A's failure to include families and respect residential choice

Summary of Testimonials

Legal Resources

DD Act Legislative History

Protection and Advocacy Class Action MR/DD Lawsuits

 Olmstead Resources

 Medicaid ICF/MR and Home and Community Based Services Waiver Resources

Characteristics of Residents of Large Facilities (Chart)

Systemic Abuse and Neglect of Persons with Developmental Disabilities in Community Settings

Lack of Health Care Access for People with Mental Retardation