Speaking out for People with
 Intellectual and Developmental Disabilities

VOR Advocacy Letters


People as Pendulums: Deinstitutionalization and People with Intellectual and Developmental Disabilities

By Tamie Hopp, VOR Director of Government Relations & Advocacy in Nonprofit Quarterly, July 16, 2014 (and reprinted in the Summer 2014 Nonprofit Quarterly Print edition)

Early reforms were quite properly motivated by the need for a system of care and supports that responded to the very individualized and diverse needs of the entire population of people with I/DD. These reforms, however, also set the stage for decades of ongoing deinstitutionalization, resulting in the elimination of specialized housing, employment and education options for people with I/DD, leaving some to question the price of “progress.”

VOR Response to DOJ Request for Comment

The U.S. Department of Justice recently issued a request for comments, in response to Executive Order 13777, which requires federal agencies to to evaluate and implement measures to lower regulatory burdens on the American people, Specifically, the Executive Order directs each agency's Regulatory Reform Task Force to identify regulatory actions that do the following:

(i) Eliminate jobs, or inhibit job creation;

(ii) are outdated, unnecessary, or ineffective;

(iii) impose costs that exceed benefits;

(iv) create a serious inconsistency or otherwise interfere with regulatory reform initiatives and policies;

(v) are inconsistent with the requirements of the Information Quality Act (section 515 of the Treasury and General Government Appropriations Act, 2001, 44 U.S.C. 3516 note), or OMB Information Quality Guidance issued pursuant to that provision, in particular those regulations that rely in whole or in part on data, information, or methods that are not publicly available or that are insufficiently transparent to meet the standard for reproducibility; or

(vi) derive from or implement Executive Orders or other Presidential directives that have been subsequently rescinded or substantially modified.

On August 14, VOR submitted comments.

Click here to VOR's Comments to the DOJ Request

Comments to the Department of Education, EO 13777

The U.S. Department of Education recently issued a request for comments, in response to Executive Order 13777, which requires federal agencies to to evaluate and implement measures to lower regulatory burdens on the American people, Specifically, the Executive Order directs each agency's Regulatory Reform Task Force to identify regulatory actions that do the following:

(i) Eliminate jobs, or inhibit job creation;

(ii) are outdated, unnecessary, or ineffective;

(iii) impose costs that exceed benefits;

(iv) create a serious inconsistency or otherwise interfere with regulatory reform initiatives and policies;

(v) are inconsistent with the requirements of the Information Quality Act (section 515 of the Treasury and General Government Appropriations Act, 2001, 44 U.S.C. 3516 note), or OMB Information Quality Guidance issued pursuant to that provision, in particular those regulations that rely in whole or in part on data, information, or methods that are not publicly available or that are insufficiently transparent to meet the standard for reproducibility; or

(vi) derive from or implement Executive Orders or other Presidential directives that have been subsequently rescinded or substantially modified.

On September 20, VOR's Jill Barker and Caroline Lahrmann submitted their own personal comments to this request.

Click here for Jill Barker's comments

Click here for Caroline Lahrmann's comments

VOR Letter to HHS and CMS

On March 14, 2017, Secretary Tom Price and CMS Administrator Seema Verma sent a letter to the Nations' Governors concerning their goals for making changes to Medicaid.

VOR President Caroline Lahrmann wrote back in response to Secretary Price and Administrator Verma. Administrator Verma replied on August 2nd.

Read the original Letter from Secretary Price and CMS Administrator Verma here

Read VOR's letter here.

Read the Response to VOR from Administrator Verma here.

 

VOR Comments To CMS' Request For Information

The Centers for Medicare and Medicaid Services (CMS) recently requested submissions and recommendations for how they might improve service in HCBS Waiver settings. VOR's comments focused on the need to expand and improve services for people not well suited to group homes as a way to imporve the services for people for whom those settings might be deemed appropriate.

We provided links to articles in our archives and from newspapers that illustrate VOR's position on these issues. The resources in this article should prove useful to many of our members in making presentations to their representatives, decision makers, and family groups.

All of the links in the footnotes will work once you download the pdf.

Please read and comment!