Speaking out for People with
 Intellectual and Developmental Disabilities


Your Legal Right To An Intermediate Care Facility

Right To Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID)

Individuals who qualify for Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID)* under Medicaid have a legal right to such facilities for as long as they remain eligible and choose to do so. Despite a deinstitutionalization effort by those opposed to congregate care, the ICF/IID program remains a legally enforceable federal entitlement under Medicaid. States which have included ICF/IID in their Medicaid State Plans, but instead offer only Waiver services, are in violation of federal Medicaid law.

Abuse and Neglect Document

VOR's Ongoing Document:
Updated August 13, 2017
This document provides a bibliography of investigative media series, state audits and peer-reviewed research in more than half the states that detail systemic concerns with regard to quality of care in community-based settings for persons with developmental disabilities. Tragedies range from physical, emotional, and financial abuse, neglect and even death. Many of these outcomes are associated with a zest to move to a "community for all" vision people with developmental disabilities without adequately considering the ramifications of separating vulnerable people from specialized care and then doing away with a critical safety net (a/k/a deinstitutionalization). The lessons learned from more than 25 states should cause policymakers and lawmakers to take pause and recognize that a range of needs requires a range of service options.
 
 

VOR Survey: Giving a Voice to Families and Guardians of Individuals with Intellectual and Developmental Disabilities in Various Residential Settings

Policy favoring deinstitutionalization has had a major adverse effect on many individuals, with a shift in funding priorities from Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID) and other specialized facilities, to smaller service options, such as Medicaid Home and Community-Based Services (HCBS) settings.

VOR Comments to the Uniform Law Commission on Guardianship

On July 3, 2017, VOR's Issues and Oversight Committee submitted comments to David English, Chair of the Committee on Guardianship, Conservatorship, and Other Protective Arrangements Act for the Uniform Law Commission (ULC) at the The National Conference of Commissioners on Uniform State Laws. VOR's submission included an introductory letter to the commissioner, comments on the draft of the Uniform Law, and VOR's position paper on guardianship and supported decision making.

Click here for the Letter to David English

Click here for the VOR Comments to the Draft Guardianship, Conservatorship, and Other Protective Arrangements Act

Click here for VOR's Position Paper on Supported Decision Making

Relief Efforts for Puerto Rico and the U.S. Virgin Islands

PUERTO RICO
  • Hurricane Maria Community Recovery Fund  uses 100% of the money raised to support low-income communities recovering from the storm in Puerto Rico.
  • United for Puerto Rico  is a fund startedby the First Lady of Puerto Rico to provide aid and support to those affected by Hurricanes Irma and Maria.
  • The Puerto Rico Community Foundation. (Fundaci├│nComunitariade Puerto Rico) is a foundation supporting community-based and grassroots organizations in Puerto Rico to improve education, housing, and economic development, and are working with their partner organizations on recovery efforts.
US VIRGIN ISLANDS