Speaking out for People with
 Intellectual and Developmental Disabilities

Colorado: VOR to Present on Rights of Individuals with Developmental Disabilities and their Families

For Immediate Release:

September 5, 2014

For More Information:

Julie Huso, Executive Director
This email address is being protected from spambots. You need JavaScript enabled to view it.

ARVADA – Julie Huso, a national advocate for people with intellectual and developmental disabilities, will give a free presentation on the rights of people with intellectual and developmental disabilities and their families at the Jefferson County Public Library at 7525 W. 57th Avenue in Arvada, Colorado at 5:30 pm on Wednesday, September 10, 2014. The public is welcome to attend.

VOR's Julie Huso Represents VOR at South Dakota Developmental Center’s Annual Celebration

For Immediate Release

September 3, 2014

REDFIELD - Julie Huso, Executive Director of VOR, a national organization for people with intellectual and developmental disabilities, will attend the South Dakota Developmental Center’s annual Fall Festival celebration later this week in Redfield, South Dakota.

VOR advocates for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD) across the country. The South Dakota Developmental Center provides individualized treatment services and supports to people with developmental disabilities and challenging behaviors when these necessary services are not available in other settings.

An Open Invitation to Families and Advocates of Individuals with Intellectual and Developmental Disabilities: Fragmented, we are just whispers. United, we are a chorus.

p>The Lander Journal, August 20, 2014
By Shawn Humberson, VOR Wyoming State Coordinator

My name is Shawn Humberson. I am a State Co-Coordinator for VOR and a Friends of Wyoming Life Resource Center (WLRC) Board member.

My profoundly disabled aunt has lived at the WLRC for the past seven years after spending the first 34 years of her life at home and receiving services from community programs. She was one of the first enrolled in the Medicaid Waiver Program. I am one of her co-guardians. I also work as a home trainer in a community program.

As you can see, I am deeply, personally and professionally, vested in Wyoming’s intellectually and developmentally disabled (I/DD) population. From my perspective, our current and future DD population is at risk. The Wyoming Department of Health (WDH) is making critical changes across the board. These changes are in response to state legislation and new federal regulations. These changes are not necessarily in the best interests of the Developmentally Disabled.

Here in Wyoming, the DD has been fragmented into three segments: those living at home, those being served in community programs, and those who live at WLRC. Each segment, counter to each other, has been forced to grovel over funding and the quest for those rare dollars has caused dissention amongst the families of the I/DD population. While we’re bickering over who deserves the funding, the Department of Health is making changes in services that affect the quality of life for our loved ones.

Local families stand up for the rights of people with disabilities, including autism, on Capitol Hill

For Immediate Release - June 10, 2014

For More Information Contact - Tamie Hopp, VOR Director of Government Relations & Advocacy, This email address is being protected from spambots. You need JavaScript enabled to view it.; 605-399-1624 voice

Local families stand up for the rights
of people with disabilities, including autism, on Capitol Hill

WASHINGTON, D.C. - June 10:  Americans with profound developmental disabilities, including autism, are being seriously threatened by the closure of their homes and reduction of services due a shift in government policy that dictates where people with profound disabilities should receive care, without regard to individual choice and level of need.  

Long time VOR Member and Pennsylvania Advocate, Offers Tribute to Polly Spare, VOR

Click here for original version of letter

September 11, 2013

Ms. Ann Knighton, President
Suite 251
836 S. Arlington Heights Road
Elk Grove Village, IL 60007

Dear Ms. Knighton,

We are all so pleased to see that Polly Spare is your 2013 Voice Award recipient. No matter how one might praise Polly and her work, it would be an understatement. Her energy and her impact in addressing critical issues involving those who do not chose to be care-dependent are unmatched.

In Pennsylvania, she often stood alone against the statist-driven mindset of our state's governors, human service bureaucrats, and their "advisory committees" dominated by one-size-fits-all advozealots. Polly's example continues to inspire us parents and families as we battle to protect our right to learn about and then choose options we feel are best for our sons and daughters with mental retardation, autism and related disorders of behavior and communication.