Speaking out for People with
 Intellectual and Developmental Disabilities

Sibling Caregivers Find Responsibilities A Struggle

Disability Scoop * December 5, 2012

About half of adult siblings of those with developmental disabilities either are or plan to be the primary caregiver for their brother or sister, but many are unprepared for the responsibility, a new survey finds.

The national poll released Wednesday indicates that among adult siblings of those with a disability, 23 percent are currently serving as primary caregivers while 1 in 3 expect to take on that role in the future. And many are finding the experience to be daunting, fraught with emotional and financial challenges and little support.

The survey conducted by the market research firm Ipsos on behalf of Easter Seals solicited feedback from 351 brothers and sisters of people with developmental disabilities from across the country. A control group of nearly 1,400 adults with typically developing siblings was also polled.

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