National Institutes of Health (NIH) Press Release
October 26, 2012
Registry connects individuals with Down syndrome with researchers
The National Institutes of Health, in partnership with a third-party vendor, PatientCrossroads, has established a Down syndrome patient registry which will aim to assemble contacts and information sharing among families, patients, researchers and parent groups. According to a press release announcing the new registry, it will allow people with Down syndrome or their family members to enter their contact information and health history in what the institute says is an online, secure, confidential database.
Doctors and dentists that are experienced in helping people with intellectual or developmental disabilities:
Special Olympics / Healthy Athletes: Provider Directory
Special Olympics / Healthy Athletes have compiled a Health Care (Doctors and Dentists) Provider Directory for local health practitioners who have experience in the needs and care of people with intellectual and developmental disabilities.
To access this directory, visit: http://info.specialolympics.org/ProviderDirectoryHA/search.asp?lang=eng
Community Health Centers
Spread across 50 states and all U.S. territories; there are 1,200 Community Health Centers that provide vital primary care to 18 million Americans with limited financial resources. To find a community health center near you, click on http://findahealthcenter.hrsa.gov