Speaking out for People with
 Intellectual and Developmental Disabilities

What's New at VOR


VOR Position Paper: Guardianship vs. Supported Decision Making

Issues to Consider Regarding Guardianship and Supported Decision Making

By VOR's Issues and Oversight Committee on Guardianship Rights

Individuals with intellectual and developmental disabilities (I/DD) and their parents, family members and guardians may have heard about Supported Decision-Making (SDM), an initiative that could affect their decision-making rights. Some see SDM as an alternative to guardianship, while others view it as an attempt to remove the legal instrument that provides a safety net for vulnerable individuals.  

VOR is a national organization that advocates for high quality care and human rights for individuals with I/DD. We understand the valuable role that guardians play in the emotional and physical well-being of their wards. As advocates who appreciate the diversity of the I/DD community and the need for a wide array of supports, we want to ensure that guardians and family members are aware of the issues connected to Supported Decision-Making so that they can make informed decisions about the care of their loved one with disabilities.

People as Pendulums: Deinstitutionalization and People with Intellectual and Developmental Disabilities

By Tamie Hopp, VOR Director of Government Relations & Advocacy in Nonprofit Quarterly, July 16, 2014 (and reprinted in the Summer 2014 Nonprofit Quarterly Print edition)

Early reforms were quite properly motivated by the need for a system of care and supports that responded to the very individualized and diverse needs of the entire population of people with I/DD. These reforms, however, also set the stage for decades of ongoing deinstitutionalization, resulting in the elimination of specialized housing, employment and education options for people with I/DD, leaving some to question the price of “progress.”

VOR Survey: Giving a Voice to Families and Guardians of Individuals with Intellectual and Developmental Disabilities in Various Residential Settings

Policy favoring deinstitutionalization has had a major adverse effect on many individuals, with a shift in funding priorities from Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID) and other specialized facilities, to smaller service options, such as Medicaid Home and Community-Based Services (HCBS) settings.

VOR Comments to the Uniform Law Commission on Guardianship

On July 3, 2017, VOR's Issues and Oversight Committee submitted comments to David English, Chair of the Committee on Guardianship, Conservatorship, and Other Protective Arrangements Act for the Uniform Law Commission (ULC) at the The National Conference of Commissioners on Uniform State Laws. VOR's submission included an introductory letter to the commissioner, comments on the draft of the Uniform Law, and VOR's position paper on guardianship and supported decision making.

Click here for the Letter to David English

Click here for the VOR Comments to the Draft Guardianship, Conservatorship, and Other Protective Arrangements Act

Click here for VOR's Position Paper on Supported Decision Making

VOR Letter to HHS and CMS

On March 14, 2017, Secretary Tom Price and CMS Administrator Seema Verma sent a letter to the Nations' Governors concerning their goals for making changes to Medicaid.

VOR President Caroline Lahrmann wrote back in response to Secretary Price and Administrator Verma. Administrator Verma replied on August 2nd.

Read the original Letter from Secretary Price and CMS Administrator Verma here

Read VOR's letter here.

Read the Response to VOR from Administrator Verma here.